Cystic Fibrosis Foundation

Cystic Fibrosis is a recessive genetic disorder that leads to progressive disability and results in early death in most cases. The Cystic Fibrosis Foundation is dedicated to providing information about the condition and to fund research that can find new and better cures for the genetic disorder. The foundation is also involved in interacting with the Federal legislative bodies with regards to any policies that are created pertaining to the condition.

The non-profit organization is a donor supported organization. It is one of the few organizations that are dedicated to this specific medical condition that many people suffer from. There are about 115 Cystic Fibrosis Care Centers and 95 Adult Programs in addition to 50 affiliate programs and 75 chapters and branch offices.

The model that the Cystic Fibrosis Foundation follows has been recognized by the National Institutes of Health (NIH) and some publications like Forbes, The New York Times, The Wall Street Journal and BusinessWeek.

Established in 1955, this foundation undertakes research in the area of cystic fibrosis, gets involved in fund raising to support the efforts of the scientists, funds drug discovery, advocates in order to keep the medical condition alive and as a top priority among the governments and medical industry. The organization also helps caregivers understand the nature of the disease in order to fight it better.

Some of the research that the Cystic Fibrosis Foundation has been doing has resulted in increasing the life expectancy of the people suffering from this condition. While those suffering from cystic fibrosis were not expected to live beyond elementary school at some time, most people are now living into their 40's and beyond.

The defective gene that causes cystic fibrosis has also been identified by the scientists at the foundation. This breakthrough research indicates that the day may not be far when we shall have a cure for this medical condition.


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